Tuesday, May 3, 2011

Thinking about my Mama this Mother's day...


I have been wondering what it's going to be like for my Mama this Mother's Day. I have moved 4 hours away, and Shannon made his move to Heaven. She will have my dad, sister and Chloe only this year, when she is used to having a house full of her children, grandchildren and laughter.
It will be a quiet setting this year for me as well. Eion and Chloe will not be here. Just Kegan and Baylee this year. This is also the very first Mother's Day I have ever had to work. But this thought is not about me, it's about my mom. I am driving back in a few weeks for a visit and we can celebrate then. Shannon on the other hand.... well lets just say I can't imagine being in my mothers shoes this year.... Here are a few poems I found while searching for one to put in my card this year....

Hope you enjoy the read.. It was a tearful one for me.
Deb



I thought of you and closed my eyes
And prayed to God today
I asked "What makes a Mother?"
And I know I heard Him say.

"A Mother has a baby"
This we know is true
"But God can you be a Mother,
when your baby's not with you?"

"Yes, you can," He replied
With confidence in His voice
"I give many women babies,
When they leave is not their choice.

Some I send for a lifetime,
And others for the day
And some I send to feel your womb,
But there's no need to stay."

"I just don't understand this God
I want my baby to be here."
He took a deep breath and cleared His throat,
And then I saw the tear.

"I wish I could show you,
What your child is doing today.
If you could see your child's smile,
With all the other children and say..."

We go to earth to learn our lessons,
Of love and life and fear,
My mommy loved me oh so much,
I got to come straight here.

I feel so lucky to have a Mom,
Who had so much love for me
I learned my lessons very quickly
My mommy set me free.

I miss my mommy oh so much
But I visit her every day.
When she goes to sleep,
On her pillows were I lay

I stroke her hair and kiss her cheek,
And whisper in her ear
Mommy don't be sad today,
I'm your baby and I'm here."

"So you see my dear sweet ones,
Your children are okay.
Your babies are born here in My home
And this is where they'll stay."

"They'll wait for you with Me,
Until your lessons through.
And on the day that you come home
they'll be at the gates for you.

So now you see what makes a Mother,
It's the feeling in your heart
It's the love you had so much of
Right from the very start.

Though some on earth may not realize
You are a mother.
Until their time is done.
They'll be up here with Me one day
and know that you are the best one."

~ Author Unknown ~


Tears
If tears could build a stairway,
and memories a lane,
I'd walk right up to Heaven
and bring you home again.
No farewell words were spoken
no time to say goodbye
you were gone before I knew it,
and only God knows why.
My heart still aches in sadness
and secret tears still flow,
what it meant to lose you,
no one will ever know.
~Author Unknown

In Your Heart
Please mommy, dont cry, do not be sad.
Treasure the time how ever short we had.
I miss you too, but I can feel your love.
Even up here flying, like a little dove.

I know it seems scary, and you feel all alone.
No one can ever replace me, I was your own.
Your sadness means I was loved every day.
Though you cant see me, beside you I lay.


It takes so much courage, for you to go on.
I know our time together, wasnt very long.
But you now will be stronger for knowing me.
It will be okay some day mommy, you will soon see.


In the times that are hard, remember I am here.
Never far from you watching; always very near.
It isnt fair we have to live so far away.
But dont worry; I hear everything that you say.


I am with you with every step that you take.
Sending reminders I love you, for your sake.
I grew in your womb but then slipped away.
Instead now forever in your heart I will stay.
©Kerri-Anne Hinds

Thursday, April 28, 2011

745 days ago.... This too shall pass




2 years doesn't seem so long, but when you look at it in days, 745 of them to be exact, you realize just how much time has passed by. Never not once did we ever think we would live anywhere other then the comfort of our little quiet town of Goessel in the house we made our home. Life seemed to be a bed of roses. Will had a great job at Learjet. We seemed to have everything we had ever hoped for and had started planning our future with our house and children.
But, as we all know- Life can change in the blink of an eye, and did it ever. The economy hit the bucket in a hurry and we were left facing a major layoff. Will felt such relief when the first round had gone through and it had missed him. The topic of conversations were nothing but "what ifs" though. What if he did get laid off? What would happen to us, would we move for more work in aviation or would we stay on unemployment until the economy came back around? We decided not to stress on it and remain thankful for the blessings we already had in our lives. As Will always says, "This too shall pass."
Unfortunately, it did not pass. a few weeks after he missed being laid off, he was given his walking papers and a final date of employment with the company that he, his father, grandfather, uncles and cousins held so dear. The McCauley's have a long line of history in that company and the older generation is starting to retire this year, 2011. We were in shock, but knew that with God on our side, we would be fine. And we were.
Not long after he was handed the notice, he got an offer with Spirit Aerosystems in Tulsa, Oklahoma. A place that seemed so far away from home at the time. It was a contract job, a temporary position. 3-6 months seemed like a good short term plan until we could figure something else out and was way better then unemployment. We talked about the kids and I staying behind since the move was only temporary. So that was the decision we landed on.
Great friends kept the kids for us, and we loaded up a few things in the van and car and made the loooong drive to Oklahoma. The drive down was fun. We enjoyed the sites and seeing green country for the first time sure was beautiful! We embraced every moment knowing that in 1 short day I would be driving back to pick up our babies alone. I must say that was the longest drive back to Kansas. I cried and cried. I thought to myself so many things. How was I going to get everything done in the house. It was all on me now. Every little thing that needed to be done, I had to do. In the same, I was worried about him being all alone in a strange place with no one to hug everyday. No one to touch. It was going to suck for the both of us in so many ways.
Not long after he was gone, we had pipes burst under the house and I found myself calling our police chief Joe to come and rescue me. Only.. he didn't rescue me... he showed up in full uniform and took pictures of me crawling around in mud under the house to try and find shut off valves for pipes. It was him, who made me realize the power of a woman! I didn't need a man to survive my husband being gone! At that moment I felt such empowerment and I got it all taken care of! I knew I was going to be okay! And I was.
The days and nights grew very lonely for all of us. The kids went through a log of changes and emotions. They had a major lack of understanding as to why. Many people assumed that Will and I had split ways, but that couldn't be further from the truth. What they didn't realize is what a long haul we would really be in for.
We took many weekends drives to Oklahoma and Will vise versa. We took advantage of every second we had as a family. There were many bumps along the way. But we made the most of everything handed to us. I continued doing daycare and became reliant on my friends to keep me sane and am so thankful that I had my adopted daughter Gracie right next door to help with the kids. (I will mention the rest of you all later in this)
What was supposed to be a spring/summer thing, ended up turning into fall and winter and back into spring again. We had approached a year of living apart for work. The discussion of a permanent move had come up many a times, but I was so set in my ways in Goessel and it was impossible to imagine leaving our home, friends and family.
Chloe had left in October of 2009 to live with Grandma Kathy in KC. The daddy change had been to much for her Aspergers Syndrom to handle. It was the hardest thing I ever did when she moved, but I knew if was for her healing and own good. Kathy did such a wonderful job supporting the choices our family had made along the way. My parents were still so unsure of the lifestyle we had chosen, but we knew in the end it would all make sense.
Birthdays came and holidays went. Traveling became a routine event and it didn't seem so far anymore. One weekend I would drive to Tulsa, another to KC and then the 3rd weekend to Wichita to get Eion. Sometimes I would hit Wichita, KC & Tulsa all in one day so we could get everyone picked up to go see daddy. Our children became (still are) traveling pros! We learned to have so much fun on the long highway drives. The Windmill Game, was by far, the most favorite. TO the point, I had memorized the location of every single one so the kids couldn't fib if they had seen one or not :)
Will and I remained strong. We knew eventually Learjet would call back. EVENTUALLY
but they never did. To stay in Tulsa working or to come back home was the choice at hand. In December 2009 the contract at Spirit came due. The job was done. But how could we walk away from a steady contract job in which had already offered Will a full time position as a direct hire. We couldn't. The responsible side of adulthood told us to keep on track and so Will hired in full time. Not long after that he went to 2nd shift and became a lead.
2010 was to become another year of travel for the both of us and many sleepless nights. Our bakery business had really started to blossom and bloom. I was becoming more and more busy everyday. Realizing that my skill would no longer carry me alone, we came upon another tough choice for our family. Will had brought up going to college during his stay in Tulsa. He kept going back and forth with it. Finally it took me telling him that I supported him no matter what and until he made up his mind yes or no, not to call back. Yes, it seemed harsh, but I know my hubby and sometimes he needs a swift kick to make a choice. (I think we all do at times) So at the beginning of June, Will called me back on a Thursday to say he had met with the college. AND THAT HE STARTED THE FOLLOWING MONDAY! Holy Cow! The college was able to get all of his papers in order and sure enough it was really happening! I went to Tulsa to celebrate. We stayed over until Monday so we could see him get all dressed up in his new gear and kissed him good luck as he walked out the door to head to class. He was finally following his true dream and I couldn't be happier for him.
On the drive home, I do believe is when reality really hit for me. He JUST started college. This was not like starting a new job that he could get a transfer. This was putting him glued to a city so far from family and home for an even longer time frame and here I was driving away from him. Ugggh heart dropped, but this was what we had chosen. I can't complain. Only support.
As time went by, I watch him get up for school at 7:15am and go until 3:00pm M-F and as soon as he got off there, he had to rush back home, change and be at Spirit by 3:45pm until sometimes 2:45am. He was running on literally zero to chase his dream. His eyes were tired (he kept me up to date with phone pics) and it was wearing on him. At night I would help him do his homework via webcam. I watched him from 4 hours away in real time get better and better. I watch through pictures what he was learning and achieving. I watched him go to school at 8am and work until midnight, hop in his car and drive home every other weekend dead tired not arriving home to us until 4:30am. He would crash for an entire day after doing that, but he continued to do it. He never gave up, he just kept pushing on.
It didn't take long for me to see the light. I am not kidding you when I say I went from "I refuse to move" to "we are moving in 4 weeks." Will came home for the 4th of July weekend. We had a spectacular holiday at my sister and brother in laws house with friends and family. It was our goodbye party and we didn't even know it yet!

I called Will on the 5th of July and told him that I was ready to move. I was more ready then I had ever been. He told me I was insane crazy and talking jibberish. He really didn't believe me I don't think...that is until I called him with 4 houses for him to go look at the next Saturday. Before you knew it I had called on houses and had driven to Tulsa numerous times to look at houses. Just when I was ready to give up hope, God sent us Mark Egan. Mark is a leasing agent in Tulsa, but the house we had called on was for a lady he was helping to rent her house out. The more I talked to him, the more we learned about each other. Come to find out he grew up in Towanda, Kansas and we even knew some of the same people. We found that we carried a lot of the same beliefs and small town values. He said well let me see what I can do and I will give you a call back...

WE GOT OUR HOUSE! Mark called back and said, you know- I am recently divorced. I live in a 5 bedroom, 2 bath, 2 story house and I would love for you to come and look at it. You guys sound like my kind of people, and I would be willing to move out of my personal family home for your family. Oh My Goodness! You have got to be kidding me. The next day I was on my way to Tulsa to go take a look. WOW Welcome home McCauley family!! Let the move begin!

What Will didn't realize is that 4th of July trip would be his last weekend ever in the house we had spent so much time remodeling and working on. Little did he know, his life was about to take a drastic turn yet again. He had spent 17 months of solid loneliness and NOW, Now he would have everything he could ever ask for... so he thought. It was very emotional for him to not help pack our life into the back of that UHAUL truck, to not help load it and cry as it pulled away from our house. For a long time he struggled with not having proper closure on our Kansas life. I think we both did. The move was so abrupt and sudden that I maybe had not thought things out as clearly as I perhaps should have.

Chloe was not that thrilled about the move. You see, when she went to KC for the school year, I had made the promise that she could attend Goessel for the '10/11' school year no matter what. And here I was packing our entire life into boxes and she was watching that promise slip away. So with the blessing and support of my parents, we came upon the decision to leave her behind for the school year. This was not an easy choice and is still something that tugs at our heart strings every single day. (She moves to home to Tulsa May 17th! Can't wait!)

On August 14th, 2010, with great friends and the company of my sister and step dad, we pulled out of our driveway and headed for Tulsa. I went to tell mom and Chloe goodbye and my heart sank and eyes filled with tears. Even though I felt like I was following God's calling, I still questioned if I were making the right choice. Onward. Only time would tell.

We made it to Tulsa safely and while we were playing the car game, my sister Robyn came and climbed in my van while sitting in front of my new home, she broke down in tears and just kept saying I can't believe this is real. I can't believe you are really leaving home. What are Shannon and I going to do with you so far away.....

On September 14, 2010, God took my brother home. It was his time. 1 month to the day that we had moved. 1 month and 1 day since I had seen my brother for the very last time. I got the call and didn't know if I should believe it or not. It couldn't be true. NO WAY! NO HOW! Sadly, it was. as we laid Shannon to rest I prayed to God asking him why now. Why did this happen. But then the answer I received, was not the answer I had expected. Chloe stayed behind with my mom and dad for strength and support so they would have young motivation to keep them uplifted during such a tragic time. I made the sudden rapid choice to move to Tulsa when I did because our Heavenly Father knew that with such an event, Will did not need to be alone. In my brothers death, I found peace. Peace of mind that all the choices and 17 longs months of struggle, we were all right where we needed to be.

My depression from the sudden loss had really set in. I needed to find a way to get up and get moving. I was in a place that I didn't know and soul besides my family and I didn't see a light at the end of the tunnel. I decided to solve this with searching for a job. I have not worked outside of our home for over 7 years. I must have been crazy submitting a pretty much blank resume, but I did it anyways. The first job I called on landed me an interview at 9am the following day. By 9:30am I was blessed with a job. 2 months later I was promoted. But even more so then that, I gained friends, strength and more faith in God then I had ever once hoped for. I love my job so much. It provides me with a schedule that works with Wills and provides fun money for our family. I learned how tired Will must be though because my hours about kill me, but then I think about how for the last 9 months will had been at work/ school for 18 hours a day. He really inspired me to pick up and push on. He always has.

On April 21st, 2011; Will completed his college education. Sleepless nights, stressful homework, elegant events, amazing works of art- My husband is now an Executive Pastry Chef. Chef McCauley, non the less- You are my hero. 746 days ago, our life was normal and quaint in Goessel, Kansas. We never wanted anything more then what we had in that very moment. Now, we live in Oklahoma and have an even more beautiful life then we could have ever imagined. It took us getting over our fear and taking risks, but you did it. We all did it.

On June 23rd, our children will watch their Daddy graduate from college. But that's not the lesson I want them to learn here. Yes education is good, but without courage and the ability to take risks, fear and being content can hold us back more then anything. I want our children to expand their view of the world and understand that life does not contain 500 people in a 1 horse town. It has so much more to offer. I don't ever want them to think that it is what it is and leave it at that.

My husband is my hero. What he did to support our family is something that not everyone is willing to do. He sacrificed himself to save us. I love him so much and I fall back in love with him over and over again every single morning I wake up next to him.

-Imagine if you had to sleep alone for 17 months away from the one you love because the economy forced your family to make a choice you never once dreamed of.

-Could you do it?

-Where would it take you?

Thank you for reading this. I apologize, I did not proof read it even though I wrote a book. My children require my attention now.

Take care until next time,

Deb






Tuesday, March 22, 2011

Spring Break Insanity



















I must say I did not realize how much I relied on my computer until my trip to Kansas last week Friday! I went back home to visit my parents and pick up the kids for spring break. Needless to say I was running a marathon from the moment I got off work Thursday.. I forgot my laptop and couldn't blog at all...so I am sorry from the start, this is going to be a book :)

Thursday evening:
Bake, cover in fondant and hand paint my mama's birthday cake. Went to sleep at 2:30am.

Friday:
Get up for work 4am (not much sleep) Work until 9ish, fly home, wake Will up for school, pack our things, head to Kegan's school and pull him early, went to Platt to pick up yet another cake (Will made one for my mom too) Get gas in the Eclipse, and head out.

Arrive in Newton at 3pm- Go straight to my Grandma & Grandpa Flores' house for my first visit in months. It was so refreshing to see them and stop in and sit down for a spell. It was great because my cousin Traci and her little girl Rylie came to see us too!!

By now we are pushing 6pm and mom called to let me know Chloe's staples were removed from her head and we could head to dinner early for her Birthday. Now I get even more family time! Whoot! Whoot! So hugs to my grandparents and off to La Cabana the little ones and I went!
How wonderful it was to walk in and see my Mama, Pop's, Sister and gorgeous daughter sitting at the table..I miss them so much every single day. We enjoyed drinks and dinner, then went to Robyn & Tony's to have cake and sing Happy Birthday to my mom. What great memories we made. ( I will blog later about moms first birthday without Shannon)

Now it's time to head to the farm (In case you are lost--it's still Friday :] ) Trying to get everyone rounded up and ready for bed, assuring that Chloe is packed and ready to go for Spring Break. Gracie & Tyler arrive a little after 10pm and now I can FINALLY lay down and get some much needed rest...That would have been nice in the event I could have actually slept..

Saturday:
6:00am It's time to wake up and have coffee with Mama. We watched the sun rise, it was a beautiful sight over the pond (I miss being there all the time..It's really the small things that count)
7:00am it's time to get the kids up, bathed, dressed and ready to go. Baylee and Kegan got picked up by Aunt Whitney at 7:30am and headed to KC to spend the week with cousin Dwight and Grandma Kathy. Chloe, Gracie and I headed to Wichita to pick up Eion from his Grandma Dana. We were supposed to be there at 8:30am and I arrived at 8:50...I was feeling pretty far behind at this point, with my Monster Energy in hand, we still were able to get on the road to Tulsa to 9:15!
Only allowing the kids to stop once for a break, we drove straight through and made it home at 12:15pm. I pretty much threw them out of the car with their luggage ran inside got dressed and made it to work by 12:45.

Work was pretty busy considering it was the last weekend of our fishing classic. I was super excited to see Will and the kids came in for a visit!! I walked around with them and notice my fatigue level was setting in and I was looking pale, but after what I had done in the last few days..I felt okay about pushing on... So I thought...

Around 7pm I got a radio call and came down the double staircase to respond and felt something I would never like to feel again. Sharp pains hit my chest, my left arm went numb and started to tingle, my ears felt like they were in a tunnel and I was going down for the count. In panic, I called Will, told him to drop the kids off at the house and meet me at St John. I am an idiot and was so worried about response time due to my brothers recent death, that I drove myself there. I barely made it to the ED doors and as I was checking in, the pains hit even worse..That was it- I was in critical condition. I have never had so many people in and out of a room working on me at the same time. With in seconds I was in a gown, had an IV and monitors hooked up. Lab came in for gallon after gallon of blood it seemed. I was scared to death knowing that my 2 babies were all the way in KC, my family in Kansas and Will rushing to get there leaving the middle kids behind at home. My brothers death kept flashing before me. Was this it? Is this really all the life I have in me? Hell No It Wasn't. I was determined to fight. When Will finally arrived, they were setting me up for my EKG. Everything came back okay. I was fine for the most part. I have plenty of follow up appointments I will be doing and some remaining unexplainable chest pains that worry me a lot. We got home from the hospital after midnight and I tucked myself into bed that night counting my every blessing. God gave me a warning to slow down that night...a warning I will never forget and always listen too.. Anxiety is something that comes with stress. It's time to lower my stress levels in a major way! Even though it was an hour later then my scheduled time.. I picked myself up and went to work and completed my entire shift. Being a manager sets a standard and I swear to you, the next person that calls in with the sniffles is going to have a pretty darn hard time convincing me that they can't make it!!

We continued on with a fabulous week of shopping, dining and play with the big kids. Got Gracie her prom dress and Eion to eat some great new foods! Chloe learned to do her hair in new ways. All in all it was a wonderful week.. I took it easy and just relaxed in every way I could.
My kids and my husband are my entire life. We watched one of our best friends get married this last weekend. There are only a few of our friends left to be married off and whether that be a year from now or 5 years from now, I look forward to the journey this life (however many years are left) has to offer everyone in our group. I am very lucky for the true friends I have and the memories we have all made.


Wednesday, March 9, 2011

As I ponder..


As I laid in bed wide awake last night, I pondered all the possible things I wanted to talk about here. I have so many things to offer. I think first and foremost, living with a child with a disability has been a life altering experience (not in a bad way) for our entire family. We saw symptoms slowly come on around age 2 and before I knew it, chasing Chloe's diagnosis became something that consumed my entire being. If I like listening to Adele, Chasing Pavements. Yes, I'm aware it's a love song..but I love all of my children like nothing I have ever loved before.

"Even if it leads nowhere?" -
Brings me to realize that so many days there was no direction. , I couldn't imagine not fighting.

"If I tell the world, I'll never say enough," -

I have become a huge advocate and voice for Autism and Aspergers syndrome . Not everyone cares to hear what I have to say, or even share in my passion for that matter. I'm going to continue to talk about it anyhow. :)

"I'd build myself up,
And fly around in circles,
Wait then as my heart drops,
and my back begins to tingle
finally could this be it" -

I remember the day I got the call. We had finally been approved for testing. I had fought at local and state levels for 3 years to get the doctors to agree and get the finances to go through. I remember driving the 2 hours to KU Med Center when Kegan was 3 days old for some of the most important tests of Chloe's life. The appointment was made 3 months in advance (that's how long it took us to get in) and we had no clue if we would have a baby in our arms or not. God must have known, because he delivered Kegan just in time!

"Should I give up, Or should I just keep chasing pavements?" -

As much as we had looked forward to the KU appointment, it was not very informative. Chloe was put through pokes, prods, physicals, neurological exams, EKG, EEG, CT, MRI..You name it she had it done. After all of the testing, the doctor came to one conclusion, Chloe was very advance for her age. All her milestones were shockingly early and her IQ was far more advanced then children even 2 and 3 years older then her. We were sent home with a contact number and off to the next doctor we went. I NEVER GAVE UP. Even when Will and I had disagreed about continuing when all had seemed to fail.
I never quit my journey.

After years of research and physicians, therapists, med doctors, and other peoples opinions, we found Dr. Kinlin. She listened to every little detail and had patients to let me read from my 500 pages of notes I had taken over time. She gathered all the details we had shared and began to work with Chloe. After 6 months, it was perfectly clear. Everything I had been "chasing" finally was diagnosed. Our daughter has Aspergers Syndrome. A form of Autism that is not really known about.

I took on the task to learn every single detail I possibly could for it. I attended law classes to assure I had every insight I would need to put her future first. We fought our school district every step of the way to obtain an IEP. (The law classes really backed up my statements on that one!)

I currently support and work with 2 - 10 families at a time. Educate, inform and guide them in the avenues available to them. I have done panels for screening case workers whom are looking to hire into the field. Putting them on the "hot seat" per say, making them understand fully that taking a job with a child in these shoes is not something you can just quit. It takes passion and heart to take on children with these issue. Yes, a few of them got up and quit before they even started.

I spent 6 solid years of my life fighting to figure out what exactly what was wrong with my daughter. In those 6 years I had 2 other children. Kegan came out with breathing issues and he was in the hospital and ER more often then not. I would say every wrinkle I have, came from what I like to call the "Hard 5." Giving birth to Baylee was our fresh of breath air. God put this healthy little being in our family because He knew we were ready for something to lighten our day. Boy has she ever. Her humor has always lifted us in the worst of times.

Chloe turns 11 less then a month from now. Her IQ is functioning at a high school level in most everything. Except math, she is only at an 8th grade level. She has been able to reduce her medications by less than half of what she was taking. She is growing into a gorgeous young lady and is starting to toss around college ideas for her future. When Chloe was 5, we were told her case was so severe she might not ever be able to leave the family home as an adult and that we needed to brace ourselves for a mental hospital, or keeping her with us for the rest of her life. With out great family support, and amazing panel of doctors, therapist, case management, parent support and attendant care workers, Chloe is moving mountains and proving herself more and more everyday. I am so proud of my daughter. I can't wait to see what career she chooses for her future and I pray that she shares the same passion and drive that I do in whatever she does.

Should i give up,
Or should i just keep chasing pavements?
Even if it leads nowhere,
Or would it be a waste?
Even If i knew my place should i leave it there?
Should i give up,
Or should i just keep chasing pavements?
Even if it leads nowhere











Tuesday, March 8, 2011

Let it Begin::


I must say, I am hopelessly addicted to Megan's Blog. I always love clicking on her link to see what the boys (including Nick) have done lately, that will bring a smile to my face. I have known Megan and Nick for a little over 15 years now. WOW That just aged us all a tad! :) Megan has always been the most giving and creative person I have ever met. She leads her life with such passion. I know my blog will never come close to being as awesome as hers. But I do look forward to using it as a tool to share memories with our family and friends now that we live out of state.

I will do my best to keep us on this! Somebody remind me in the event I have sluffed off! If I can be on Facebook for long periods of time, surely I can find time to Blog too!